Sunday, 24 January 2016

A message from Jeni's sisters....

It is with great sadness that we have to write to let you know that our amazing courageous littlest sister Jeni died on Saturday morning. We are beyond devastated.

Jeni was taken to hospital on Thursday afternoon with a severe headache. This was confirmed as a bleed on the brain. She was transferred to St Georges Hospital, but overnight her condition worsened to the extent that she was taken into intensive care and put on a ventilator. Mum and Filo arrived at the hospital on Friday morning to this news and immediately called us to be with Jeni.
We told her how much we loved her, that we would take care of her boys and that it was ok for her to go. We told her Dad was waiting for her.
 The doctors had been hoping to take her off the ventilator and insert a shunt in her brain to relieve the pressure but her condition continued to deteriorate very quickly to a point where it was believed she had suffered brain stem death.

Jeni, being the amazing person she was, had signed up to be an organ donor. We had the news this morning that she had been able to help save several lives with the donation of her liver, both kidneys and pancreas.

We would like to thank each and every one of you for the support and love you have shown not just Jeni, but our entire family over the last 8 weeks. These are some of our darkest days, but together with your support we know we will get through it.

This blog was very important to Jeni. It helped her share her thoughts with you. This last blog post honours the end of her journey.

Wednesday, 20 January 2016


Today has been a lot of fun, this morning my sister and I took the kids to Little Street in Frimley

Fireman Massimo!

OOooohh cupcake!

Making Mummy a coffee

Dr Massimo will make all Mummy better!

On the phone

He hung up!

Hello, how may I help you?

Massimo's special face!

My Special Sister!

Alex's favourite hat!

He sat like this for far too long! 

Yesterday was not such a great day emotionally, I'm really struggling with the whole 15 month time stamp. I was also supposed to have a counselling session that got cancelled and I think this left me mulling over everything without actually being able to vent but it's nice to be able to balance a bad day against a good one. It really is like  a rollercoaster ride, I'm up high one minute feeling great then I'm crashing down the next screaming the whole way.

Filo and I went for afternoon tea at Great Fosters in Egham where we got married, we had a walk around the gardens which was lovely as the sun was shining, quite different to the day we got married as it was freezing that day!